Hi. My name is Tifanee and I have a saddle pulmonary embolism.
I was told a standard hospital stay for saddle PE is a week to 2, maybe longer. I was in the hospital for almost 2 days before being released, the state of my good health the culprit for my short stay. Since being diagnosed a few weeks ago, I’ve found myself randomly crying, typically when I can steal a few moments to myself and no one can see me. I’m coming to terms with the fact that this is serious and I could (have) die(d). But, hey, I’m still here. Winning!
I met with my hematologist (blood doctor) a couple days ago and he told me the nerves in my right calf may never be the same again. Meaning, my calf could swell at days end for the rest of my life. Fun. And then there’s the no travel zone, which I currently find myself in. With the exception of my right leg giving me use of a handicap placard, physically I’m doing well, but emotionally I’m drained. For someone who’s not all that emotional, I feel like I’m on emotion overload and I don’t really want to talk about it. Everyone means well, but I just don’t want to focus on it. I’m dwelling already…right now…as I type…and every day because I have to throw back a blood thinner pill every day for at least 6 months. And I have to go see doctors and have blood drawn. It sucks, but I’m alive. I get it, because I want to live for another 40, 50 years. This is my reality though. Do not minimize my feelings about what I’m going through. My life isn’t over, but so much has changed and my life, more so my body, may not be the same even after full recovery. So, for anyone wanting to give their two cents, eff you, I can cry if I want to.
But mostly, I’m just irked that I’m grounded. Literally. Canceling my trip to Vienna was not up for debate. I couldn’t even walk and oh yeah, that really large blood clot covering my lungs and part of my heart too. I just want my regular life back. And there’s Costa Rica this month. When I inquire about traveling, the timeframe goes down. At first it was 6 months, then 3 months. With Costa Rica right around the corner, I’m hoping I get the green light.
I love to travel. Those who know me know that I’m always on the go, flying somewhere and I don’t like to sit in one place for long. I wouldn’t have it any other way and yet, my health has gotten in the way of the love of my life. Travel is more than just being on holiday or going somewhere to get an Instagram worthy photo. It’s my life. Travel is food for thought. Travel is a lifestyle and a way of life. I feel the most like me when I’m traveling. I’m more at ease and nervous energy is a non-factor when I travel. I’ve developed a longstanding bond with travel that is unwavering. Travel has offered me experiences of a lifetime, given me a broader perspective of life and helped create friendships with amazing people. Travel truly is priceless. It makes me unbelievably happy. That’s why when I was hospitalized for a large blood clot in my chest and clots in my right leg a week before I was going to take one of the trips of my dreams, my heart plummeted. I was crushed. Thus began the process of cancelling everything.
The first thing I did was call the airline. My flight was on Air France and they were amazing. Even though I had booked my flight through a third party site, I was able to get the flight cancelled and receive a credit for the amount I paid to use for a future flight, with no re-booking fee attached. But for those who are having to cancel for a health/medical reason, keep in mind that they will refund your money if that’s the option you want. I just know I’m going to book that flight again, sometime soon and I will use the credit.
Most of my accommodations were made through Booking.com The great thing about booking my rooms through Booking.com is that I didn’t have to pay for anything upfront and the cancellation policies for the places I was staying was great. I had until a couple days before check-in to cancel. Once I did that, I moved on to any activities I had planned. Luckily, I hadn’t booked any tours or anything major yet, but I was going to pick up a 2-day Vienna Pass. For those of you that blog and do ads or sponsored posts, having good communication is key. I reached out to my contact for the Vienna Pass and explained the situation. I was able to get an agreement for a pass at a later date, whenever that later date is. The one thing about this being a solo trip is that I didn’t have to bail on anyone else and feel bad. And trusts me, even though I couldn’t do anything about the blood clot, I still would have felt bad for having to cancel if this was a group trip planned.
With all the essentials handled, I was left with just my thoughts. Now what do I do since I’m crippled (sort of)? Well for one, I think this is going to slightly expand what I blog about. Because there will be a lack of trapezing around the world, I’ve done a little brainstorming with the help of others in FB groups I’m in. Taking local trips and reviewing local restaurants and activities might become a thing. I already have a review in the works for a brunch spot in Houston. And then there’s a few places, spas, etc I have in mind. Also, glamping has been on my mind lately and there’s a few places I’ve read about around Texas that look like some pretty nifty glamping spots. The most unexpected things can lead to other opportunities and experiences.
Sometimes, when life throws you lemons, you squeeze ‘em, grab a bottle of champagne, and make mimosas. I think that’s how it goes.
Have you ever had a health issue keep you or someone you know from traveling? Tell me all about it in the comments! Share your stories with me.
Thank you for sharing your story. I hope you get back to traveling soon, and here’s to many adventures in your future!
Me too! Thanks for reading.
I love your positive attitude! I didn’t know that airlines would refund a flight if it was for health/medical reasons… Good to know. Also, your tips about using a travel website that provides good customer service and a solid cancellation policy are good to note as well!
I didn’t either. I was a little shocked when the first thing she said to me was how to go about getting a refund. I was like, wait…I just wanted a credit to use for future travel lol
I’m so sorry you had to postpone traveling! I know that is disappointing, but I’m glad you’re doing better. I’m actually scared of this happening; I think you are so brave. I hope you can resume planning your trips soon!
Don’t be scared! It’s kind of one of those things were you just have to be mindful of doing things to help prevent them, especially on long trips. Thank you for reading and I hope I get back to my regular travels soon too!
Oh no fun! Was your constant traveling the cause of your clot? Is there a way to prevent it? There is so much to see stateside you do not have to slow down your travels! ROAD TRIP TIME! I cannot wait to see what adventures you come up with!
Actually, they haven’t really determined what it is…but, I’M pretty sure it had to do with the swollen ankle when I got off the plane in Cuba and then it stayed swollen for 3 whole days. I didn’t even think anything of it at the time, but that pesky hindsight is 20/20. Basically, the circulation was cut off around my ankle for 3 days and… Read more »
I am so sorry to hear about your health problems right now! I wish you all the best and hope you can visit Costa Rica really really soon – and Vienna (the capital of my country!) too! I could not fly to Tahiti due to a cast on my leg this summer – but that is nothing compared to what you are going through. Keep… Read more »
I called my doctor’s office today and was told I can go on my Costa Rica trip! I’m so excited! I was in orchestra in middle school and high school, played the violin, so going to Vienna is a musical dream for me. I am waiting on another flight deal and then I’m definitely re-booking that trip!
Wow, that sucks. I can’t imagine what you’re going through. But kudos to you for looking at other outlets. Glad the airline was so accommodating.
The airline wanting to refund my trip was a pleasant surprise
Dear friend this is all part of life but with your positivity you will not let your passion dampen. I am sure you will have all the joys of travels.
Thank you!
Sorry, you have to go through this!
If I may ask, though: How did you get the blood clots? Is there some advice you can give as to how to avoid them?
Speedy recovery & happy continued travels near and far!
Carola
I have bad circulation in my ankles. I walked around for 3 days in Cuba with my ankles swollen. I should have done what I always do when my ankles swell and elevate them, but I didn’t. Some people are predisposed to getting blood clots, generally a hereditary condition. But clots can form when you’re sitting in one position for long periods of time. Walking… Read more »
I don’t think I’d be able to be as positive as you are. I do hope you’ll get well soon and back on track with your traveling adventures.
Me too, thank you!
Thank you for sharing such a personal story! It’s a part that people often leave out but I think it’s super important to talk about it and thumbs up for putting your health first and cancelling the trip to Vienna! I once got really sick during a vacation in Crete so that I couldn’t leave the hotel at all and had to go to a… Read more »
Thanks for reading. Health is definitely important. That sucks your Crete trip was kind of ruined. I hope you get to go again. I’ll be back on my feet in no time.